Who Are We?
Haemophilia Wales provides information, support and advocacy to everyone with Haemophilia, Von Willebrands and other bleeding disorders, including their families and carers. In Wales there are approximately 900 people with an Inherited Bleeding Disorder, Haemophilia is a lifelong condition it is therefore important that you and your child learn about the condition in order to enjoy a healthy life.
Haemophilia is treatable and a child born with Haemophilia in Wales can look forward to a normal life expectancy and an excellent quality of life.
To ensure that we have choice in the care we receive and a voice for everyone with a bleeding disorder in Wales and ultimately a cure.
– To provide Information, Support and Advocacy for everyone with a Bleeding Disorder
– To ensure access to Comprehensive care and new treatments
– To campaign for an acknowledgement and compensation for Haemophiliacs infected with contaminated blood products in the 1970s & 1980s