• info@haemophiliawales.org

Who Are We?

Haemophilia Wales provides information, support and advocacy to everyone with Haemophilia, Von Willebrands and other bleeding disorders, including their families and carers. In Wales there are approximately 900 people with an Inherited Bleeding Disorder, Haemophilia is a lifelong condition it is therefore important that you and your child learn about the condition in order to enjoy a healthy life.

Haemophilia is treatable and a child born with Haemophilia in Wales can look forward to a normal life expectancy and an excellent quality of life.

 

Our Vision

To ensure that we have choice in the care we receive and a voice for everyone with a bleeding disorder in Wales and ultimately a cure.

 

Our Mission

– To provide Information, Support and Advocacy for everyone with a Bleeding Disorder
– To ensure access to Comprehensive care and new treatments
– To campaign for an acknowledgement and compensation for Haemophiliacs infected with contaminated blood products in the 1970s & 1980s

Update on financial support

From 1 November 2017 support will be provided by a separate governmental organisation in each of the four UK devolved administrations, assistance is determined on the basis where an individual was infected with HIV and or Hepatitis C. All requests for assistance should be directed in the first instance to the dedicated offices list below.

Wales: Velindre NHS Trust
Tel: 02920902280

E mail: wibss@wales.nhs.uk

England: NHS Business Services Authority
Tel: 0300 330 1294
Email: nhsbsa.eibss@nhs.net

Northern Ireland: Northern Ireland Regional Business Services Organisation
Tel: 02895 363817
Email: bso.ibss@hscni.net

Scotland – support for those infected in Scotland has been provided by NHS National Services Scotland since 1 April 2017
Tel: 0131 295 6754
Email: NSS.SIBSS@nhs.net

Upcoming events

Haemophilia Centres in Wales

Cardiff – 02920 743403 (Daytime) / 02920 747747 (Out of Hours)

Bangor – 01248 348008 (Daytime) / 01248 384384 (Out of Hours)

Swansea – 01792 200368 (Daytime) / 01792 205666 (Out of Hours)

Abergavenny – 01873 732372 (Daytime) / 01873 732732 (Out of Hours)

Contact Us

Address: Haemophilia Wales, 17 Alfreda Road, Cardiff, Whitchurch, CF14 2EH

Email: info@haemophiliawales.org

Facebook: /HaemophiliaWales

Recent Facebook Posts

Diana Johnson's urgent Question today on when the Judge will be appointed to Chair the Public Inquiry into contaminated blood was well supported by Welsh MPs Jessica Morden, Liz Saville Roberts, David Hanson, Madelaine Moon, Stephen Doughty and Paul Flynn. Haemophilia Wales met with the Haemophilia Society at the Welsh Assembly on 4th January. We will be attending the APPG on Wednesday 31st January and the Group Litigation Hearing on 1st February. For further details on the above please contact us www.youtube.com/watch?v=HCpRv7C9hDc ... See MoreSee Less

View on Facebook